down syndrome: (n.) a genetic disorder associated with the presence of an extra chromosome 21
THE STATS
THE STORIES
Maddy The Model
Super Jack
My International Supermodel Daughter
THE AMBASSADOR
THE RESOURCES
NATIONAL ASSOCIATION FOR DOWN SYNDROME
www.nads.org
NADS offers specific support for new parents and grandparents, as well as parents of teenagers and adults with Down syndrome. NADS provides mentoring programs, parent support groups, parent workshops, family retreats, and work experience programs for those living in the Chicago area, but their website contains educational information and helpful links to everything Down syndrome-related.
NATIONAL DOWN SYNDROME CONGRESS
www.ndsccenter.org/programs-resources/health-care
Through the caring innovation of medical professionals, the typical lifespan of an individual with Down syndrome now approaches 60 years of age, the average for all people. Equally important, advancements in cardiology, nutrition, the behavioral sciences and more have opened a high quality of life for people with Down syndrome.
LUMIND IDSC
www.lumindrds.org/learn/webinars-and-presentations
LuMind IDSC offers access to recordings of their ongoing educational series of webinars — web-based audio and slide presentations — led by the principal investigators of the exciting research for Down syndrome. LuMind IDSC believes these sessions offer unprecedented access to the scientists who are actively advancing the field.
NATIONAL DOWN SYNDROME SOCIETY
www.ndss.org/donate
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
GLOBAL DOWN SYNDROME FOUNDATION
www.globaldownsyndrome.org/get-involved/get-representative-board-advocacy
The Congressional Task Force on Down Syndrome is a bipartisan group of federal Senators and Representatives who work together to support the interests of the Down syndrome community. The Global Down Syndrome Foundation works closely with members of the Task Force to make sure that our community’s voices are heard in Congress.
GIGI'S PLAYHOUSE
www.gigisplayhouse.org/volunteer
With over 40 brick and mortar and pop up locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the ONLY network of Down Syndrome Achievement Centers. Every day, they provide FREE, life-changing therapeutic, educational and career training programs for 30,000+ individuals of all ages. GiGi’s Playhouse is a volunteer-run organization, relying on the skill and dedication of volunteers of various levels of expertise to keep their programs vibrant, educational, purposeful, fun and free.
www.nads.org
NADS offers specific support for new parents and grandparents, as well as parents of teenagers and adults with Down syndrome. NADS provides mentoring programs, parent support groups, parent workshops, family retreats, and work experience programs for those living in the Chicago area, but their website contains educational information and helpful links to everything Down syndrome-related.
NATIONAL DOWN SYNDROME CONGRESS
www.ndsccenter.org/programs-resources/health-care
Through the caring innovation of medical professionals, the typical lifespan of an individual with Down syndrome now approaches 60 years of age, the average for all people. Equally important, advancements in cardiology, nutrition, the behavioral sciences and more have opened a high quality of life for people with Down syndrome.
LUMIND IDSC
www.lumindrds.org/learn/webinars-and-presentations
LuMind IDSC offers access to recordings of their ongoing educational series of webinars — web-based audio and slide presentations — led by the principal investigators of the exciting research for Down syndrome. LuMind IDSC believes these sessions offer unprecedented access to the scientists who are actively advancing the field.
NATIONAL DOWN SYNDROME SOCIETY
www.ndss.org/donate
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
GLOBAL DOWN SYNDROME FOUNDATION
www.globaldownsyndrome.org/get-involved/get-representative-board-advocacy
The Congressional Task Force on Down Syndrome is a bipartisan group of federal Senators and Representatives who work together to support the interests of the Down syndrome community. The Global Down Syndrome Foundation works closely with members of the Task Force to make sure that our community’s voices are heard in Congress.
GIGI'S PLAYHOUSE
www.gigisplayhouse.org/volunteer
With over 40 brick and mortar and pop up locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the ONLY network of Down Syndrome Achievement Centers. Every day, they provide FREE, life-changing therapeutic, educational and career training programs for 30,000+ individuals of all ages. GiGi’s Playhouse is a volunteer-run organization, relying on the skill and dedication of volunteers of various levels of expertise to keep their programs vibrant, educational, purposeful, fun and free.
